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National Palliative Care Research Center

Without research, palliative care is an art, not a science.

Caregiver Assessment

The following is a selection of tools that measure grief reactions; used to assess bereavement needs and outcomes:

Afterdeath Bereaved Family Interview (Hospital)
A survey used to measure quality of care at the end of life from the unique perspective of family members. Please complete the Toolkit Registration Form.

Afterdeath Bereaved Family Interview (Hospice)

Afterdeath Bereaved Family Interview (Nursing Home)

Caregiver Strain Index
A tool that measures strain related to care provision.  Used to assess individuals who have assumed the role of caregiver for an older adult.

FAMCARE Scale
A 20-item scale measuring family satisfaction with health care given to the patient and to them.

Grief Resolution Index
Measures how well a widow has come to terms with death.

Inventory of Complicated Grief
A tool to measure the maladaptive symptoms of loss.

 

"NIH announces RFA for Implementation Research" | 6th Research Congress of the EAPC, Glasgow, UK, June 10-12, 2010:Abstract submission deadline November 16 | A Global Problem: Cancer Pain from the Laboratory to the Bedside | A look at the new field of palliative care | Lung Cancer Patients Receiving Palliative Care Lived Two Months Longer New Study Shows Impact of Early Palliative Care Intervention | Lung Cancer Patients Receiving Palliative Care Lived Two Months Longer New Study Shows Impact of Early Palliative Care Intervention | NIH Seeks High Risk, High Impact Proposals through NIH Director's Pioneer, New Innovator, and Transformative R01 Initiatives | NIH Seeks High Risk, High Impact Proposals through NIH Director's Pioneer, New Innovator, and Transformative R01 Initiatives | NPCRC and American Cancer Society Award $1.5 Million in Palliative Care Research Grants | NPCRC receives a $5 million grant from the National Cancer Institute. | NPCRC receives a $5 million grant from the National Cancer Institute. | One Day Extension for Full Proposal Submission | Palliative Care Intervention for Patients with Advanced Cancer Provides Quality of Life and Mood Benefits - JAMA, Aug. 19, 2009 | Privacy Policy | Scientific Advisory Council | SOCIAL SUPPORT IS KEY TO NURSING HOME LENGTH OF STAY BEFORE DEATH | The Mapi Research Institute has announced an award for a junior person who works on improving the quality life of the terminally ill.

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