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National Palliative Care Research Center

Without research, palliative care is an art, not a science.

Quality of Life

The following is a selection of tools designed to measure quality of life for patients with advanced disease.

EORTC QOL Scale
A 30-item, cancer specific questionnaire developed by the European Organization for Research and Treatment of Cancer for assessing the quality of life in cancer patients.  Contact the EORTC Quality of Life Department for more information: http://groups.eortc.be/qol

FACT-G (FACT-L)
Used to assess the functional status of patients with specific cancer diagnosis.
Complete the FACIT User's Agreement in order to access and use this tool.

McGill Quality of Life Index
A 20-item scale specifically developed to measure quality of life at the end of life.  Contact the author at robin.cohen@mcgill.ca to complete the User's Agreement and obtain a copy of this tool.

Missoula-VITAS Quality of Life Index (MVQOLI)
The MVQOLI asks patients about 5 dimensions or domains of quality of life:
symptoms; function; interpersonal; well-being; and transcendence. The instrument is specifically designed to assess the patients personal experience in each of these dimensions.  Please register with the author to use this tool.

Needs at the End-of-life Screening Tool (NEST)
NEST is a comprehensive assessment and outcome measures instrument.

Quality of Life at the End of Life (QUAL-E)
A tool to assist in the evaluation of the quality and effectiveness of interventions targeting improved care at the end of life.

 

"NIH announces RFA for Implementation Research" | 6th Research Congress of the EAPC, Glasgow, UK, June 10-12, 2010:Abstract submission deadline November 16 | A Global Problem: Cancer Pain from the Laboratory to the Bedside | A look at the new field of palliative care | Lung Cancer Patients Receiving Palliative Care Lived Two Months Longer New Study Shows Impact of Early Palliative Care Intervention | Lung Cancer Patients Receiving Palliative Care Lived Two Months Longer New Study Shows Impact of Early Palliative Care Intervention | NIH Seeks High Risk, High Impact Proposals through NIH Director's Pioneer, New Innovator, and Transformative R01 Initiatives | NIH Seeks High Risk, High Impact Proposals through NIH Director's Pioneer, New Innovator, and Transformative R01 Initiatives | NPCRC and American Cancer Society Award $1.5 Million in Palliative Care Research Grants | NPCRC receives a $5 million grant from the National Cancer Institute. | NPCRC receives a $5 million grant from the National Cancer Institute. | One Day Extension for Full Proposal Submission | Palliative Care Intervention for Patients with Advanced Cancer Provides Quality of Life and Mood Benefits - JAMA, Aug. 19, 2009 | Privacy Policy | Scientific Advisory Council | SOCIAL SUPPORT IS KEY TO NURSING HOME LENGTH OF STAY BEFORE DEATH | The Mapi Research Institute has announced an award for a junior person who works on improving the quality life of the terminally ill.

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